Emily walks around the family's vegetable strawberry garden.
 Emily plays with fresh chicken eggs on a play set Joe built for his daughters.
 Joe massages his daughters legs which often get tired on days where she doesn't use her crutches.
 Emily Koesters has a deep love of the Mother Mary. Emily is pictured here with her growing collection of Mary-themed keepsakes.
 Emily, Erin and Taylor-Jo visit the sheep at Luv a Lamb, an program that is part of the True Buddy Farms in Papillion. The program focuses on special needs children and the benefits of therapy involving interaction and care for farm animals. Emily occasionally walks with crutches, but gets tired on days where she does a lot of walking without them.
 Erin administers a round of the daily evening medications through Emily's g-tube.
 Emily rides on her 4-wheeler while playing in the yard with her sister Taylor-Jo.
 Emily and Taylor-Jo play with Emily's guinea pig, Oreo.
 Emily reads aloud a book about guinea pigs while playing with her pet guinea pig, Oreo.
 Emily's father Joe prepares the morning medications, often administered while Emily is still asleep, through a tube that goes directly to her stomach.
 Joe visits with his daughter Emily after getting home from work.
 Taylor-Jo and Emily play with hula-hoops on the patio at the family's home in Gretna.
 Joe administers a round of Emily's evening medications.
 Emily plays with fresh chicken eggs on a play set Joe built for his daughters.
 Emily, Erin and Taylor-Jo visit the sheep at Luv a Lamb, an program that is part of the True Buddy Farms in Papillion. The program focuses on special needs children and the benefits of therapy involving interaction and care for farm animals. Emily occasionally walks with crutches, but gets tired on days where she does a lot of walking without them.
 Emily says a prayer to the Mother Mary at the Holy Family Shrine.
 Emily lights a candle at the Holy Family Shrine.
 Emily explores the Holy Family Shrine.
 Erin administers Emily's morning medications.
 Joe says goodbye to Erin before going to work.
 Emily rests in a hammock while Taylor-Jo climbs a tree on the family’s property.
 Erin prepares Emily's morning medications.
 Emily's father Joe administers Emily's medications through her gastrostomy tube, or G-tube, while she sleeps. All of Emily's medications are in liquid form which makes them easy to administer, but also means that if she takes them all at once she gets nauseous. To avoid making her feel ill, Emily's parents will administer her medications every 20 to 30 minutes in the morning and in the evening.
 Emily watches television in the family's living room while her mother and sister play.
 Emily’s arms often get tired if she holds them above her head for very long. To make the task easier, Joe washes her hair for her in the kitchen sink.
 Emily and Taylor-Jo ride in the back seat of the family's wheelchair-accessible van.
 Emily works with her summer school instructor, Peggy Eggers, while in class at Gretna Middle School.
 Emily rests on the front steps of the Gretna Middle School while waiting for her summer school class to start.
 Erin, Emily and Taylor-Jo make a stop at Children's Hospital & Medical Center in Gretna for one of Emily's appointments.
 Emily, Erin and Taylor-Jo visit the sheep at Luv a Lamb, an program that is part of the True Buddy Farms in Papillion. The program focuses on special needs children and the benefits of therapy involving interaction and care for farm animals.
 Emily rests at True Buddy Farms. Emily occasionally walks with crutches, but gets tired on days where she does a lot of walking without them.
 Emily swims during her aqua therapy class at CHI Health Wellness Center at Lakeside in Omaha.
 Emily get changed after her aqua therapy class at CHI Health Wellness Center at Lakeside in Omaha.
 Emily Koesters has a deep love of the Mother Mary. Emily is pictured here with her Mary necklace that she wears most days.
 The theme of "believe" runs throughout the Koesters home, apparent in may decorative items and everyday household pieces. Erin explains the theme as encompassing all beliefs and ideas rather than one religious or spiritual belief.
 The family's theme of "believe" carries to Erin's car as well.
 Emily walks to the edge of the family's property.
 Taylor-Jo and Emily check out the family's pool.
 Taylor-Jo and Emily walk through the family's property.
 Erin shows her daughters' Barbie play room in the original part of the family's home. When Emily began to need more round-the-clock care, the family built an addition on their home so that everyone could be living and sleeping on the first floor.
 Emily explores her playhouse.
 Emily reads aloud a book about guinea pigs while playing with her pet guinea pig, Oreo.
EmilyStory043.JPG
 Erin juggles a busy family schedule, filled with Emily's doctor appointments, her daughters' social commitments, school, running a non-profit, and generating income with her home-based business. The staggering number of hours spent battling for medications and services to be covered by Emily's Medicaid is not only taxing but takes Erin away from time spent with her family.
 Erin juggles a busy family schedule, filled with Emily's doctor appointments, her daughters' social commitments, school, running a non-profit, and generating income with her home-based business. The staggering number of hours spent battling for medications and services to be covered by Emily's Medicaid is not only taxing but takes Erin away from time spent with her family.
 Emily takes a sip of water while playing in the backyard with her sister.
 Joe dries Emily’s hair after washing it in the kitchen sink.
 Joe and Emily play before he leaves for work.
 Erin puts sunscreen on Emily before the girls go outside to play. Some of Emily’s medications make her very sensitive to sunlight, burning almost instantly if she is exposed to the sun.
 Emily rests after an early morning and playing outside in the summer heat.
 Emily greets her father Joe after he came home from work as the family readies for dinner.
 Erin administers a round of Emily's evening medications while Emily's sister Taylor-Jo tries to play with her.
EmilyStory053.JPG
 Erin and Emily embrace.
 Emily visits with her mother Erin at the end of the day.
 The Koesters family at their home in Gretna.
 Emily explores her playhouse.
 Emily with her mother Erin, father Joe and younger sister Taylor-Jo.
 Emily walks around the family's vegetable strawberry garden.
Emily walks around the family's vegetable strawberry garden.
 Emily plays with fresh chicken eggs on a play set Joe built for his daughters.
Emily plays with fresh chicken eggs on a play set Joe built for his daughters.
 Joe massages his daughters legs which often get tired on days where she doesn't use her crutches.
Joe massages his daughters legs which often get tired on days where she doesn't use her crutches.
 Emily Koesters has a deep love of the Mother Mary. Emily is pictured here with her growing collection of Mary-themed keepsakes.
Emily Koesters has a deep love of the Mother Mary. Emily is pictured here with her growing collection of Mary-themed keepsakes.
 Emily, Erin and Taylor-Jo visit the sheep at Luv a Lamb, an program that is part of the True Buddy Farms in Papillion. The program focuses on special needs children and the benefits of therapy involving interaction and care for farm animals. Emily occasionally walks with crutches, but gets tired on days where she does a lot of walking without them.
Emily, Erin and Taylor-Jo visit the sheep at Luv a Lamb, an program that is part of the True Buddy Farms in Papillion. The program focuses on special needs children and the benefits of therapy involving interaction and care for farm animals. Emily occasionally walks with crutches, but gets tired on days where she does a lot of walking without them.
 Erin administers a round of the daily evening medications through Emily's g-tube.
Erin administers a round of the daily evening medications through Emily's g-tube.
 Emily rides on her 4-wheeler while playing in the yard with her sister Taylor-Jo.
Emily rides on her 4-wheeler while playing in the yard with her sister Taylor-Jo.
 Emily and Taylor-Jo play with Emily's guinea pig, Oreo.
Emily and Taylor-Jo play with Emily's guinea pig, Oreo.
 Emily reads aloud a book about guinea pigs while playing with her pet guinea pig, Oreo.
Emily reads aloud a book about guinea pigs while playing with her pet guinea pig, Oreo.
 Emily's father Joe prepares the morning medications, often administered while Emily is still asleep, through a tube that goes directly to her stomach.
Emily's father Joe prepares the morning medications, often administered while Emily is still asleep, through a tube that goes directly to her stomach.
 Joe visits with his daughter Emily after getting home from work.
Joe visits with his daughter Emily after getting home from work.
 Taylor-Jo and Emily play with hula-hoops on the patio at the family's home in Gretna.
Taylor-Jo and Emily play with hula-hoops on the patio at the family's home in Gretna.
 Joe administers a round of Emily's evening medications.
Joe administers a round of Emily's evening medications.
 Emily plays with fresh chicken eggs on a play set Joe built for his daughters.
Emily plays with fresh chicken eggs on a play set Joe built for his daughters.
 Emily, Erin and Taylor-Jo visit the sheep at Luv a Lamb, an program that is part of the True Buddy Farms in Papillion. The program focuses on special needs children and the benefits of therapy involving interaction and care for farm animals. Emily occasionally walks with crutches, but gets tired on days where she does a lot of walking without them.
Emily, Erin and Taylor-Jo visit the sheep at Luv a Lamb, an program that is part of the True Buddy Farms in Papillion. The program focuses on special needs children and the benefits of therapy involving interaction and care for farm animals. Emily occasionally walks with crutches, but gets tired on days where she does a lot of walking without them.
 Emily says a prayer to the Mother Mary at the Holy Family Shrine.
Emily says a prayer to the Mother Mary at the Holy Family Shrine.
 Emily lights a candle at the Holy Family Shrine.
Emily lights a candle at the Holy Family Shrine.
 Emily explores the Holy Family Shrine.
Emily explores the Holy Family Shrine.
 Erin administers Emily's morning medications.
Erin administers Emily's morning medications.
 Joe says goodbye to Erin before going to work.
Joe says goodbye to Erin before going to work.
 Emily rests in a hammock while Taylor-Jo climbs a tree on the family’s property.
Emily rests in a hammock while Taylor-Jo climbs a tree on the family’s property.
 Erin prepares Emily's morning medications.
Erin prepares Emily's morning medications.
 Emily's father Joe administers Emily's medications through her gastrostomy tube, or G-tube, while she sleeps. All of Emily's medications are in liquid form which makes them easy to administer, but also means that if she takes them all at once she gets nauseous. To avoid making her feel ill, Emily's parents will administer her medications every 20 to 30 minutes in the morning and in the evening.
Emily's father Joe administers Emily's medications through her gastrostomy tube, or G-tube, while she sleeps. All of Emily's medications are in liquid form which makes them easy to administer, but also means that if she takes them all at once she gets nauseous. To avoid making her feel ill, Emily's parents will administer her medications every 20 to 30 minutes in the morning and in the evening.
 Emily watches television in the family's living room while her mother and sister play.
Emily watches television in the family's living room while her mother and sister play.
 Emily’s arms often get tired if she holds them above her head for very long. To make the task easier, Joe washes her hair for her in the kitchen sink.
Emily’s arms often get tired if she holds them above her head for very long. To make the task easier, Joe washes her hair for her in the kitchen sink.
 Emily and Taylor-Jo ride in the back seat of the family's wheelchair-accessible van.
Emily and Taylor-Jo ride in the back seat of the family's wheelchair-accessible van.
 Emily works with her summer school instructor, Peggy Eggers, while in class at Gretna Middle School.
Emily works with her summer school instructor, Peggy Eggers, while in class at Gretna Middle School.
 Emily rests on the front steps of the Gretna Middle School while waiting for her summer school class to start.
Emily rests on the front steps of the Gretna Middle School while waiting for her summer school class to start.
 Erin, Emily and Taylor-Jo make a stop at Children's Hospital & Medical Center in Gretna for one of Emily's appointments.
Erin, Emily and Taylor-Jo make a stop at Children's Hospital & Medical Center in Gretna for one of Emily's appointments.
 Emily, Erin and Taylor-Jo visit the sheep at Luv a Lamb, an program that is part of the True Buddy Farms in Papillion. The program focuses on special needs children and the benefits of therapy involving interaction and care for farm animals.
Emily, Erin and Taylor-Jo visit the sheep at Luv a Lamb, an program that is part of the True Buddy Farms in Papillion. The program focuses on special needs children and the benefits of therapy involving interaction and care for farm animals.
 Emily rests at True Buddy Farms. Emily occasionally walks with crutches, but gets tired on days where she does a lot of walking without them.
Emily rests at True Buddy Farms. Emily occasionally walks with crutches, but gets tired on days where she does a lot of walking without them.
 Emily swims during her aqua therapy class at CHI Health Wellness Center at Lakeside in Omaha.
Emily swims during her aqua therapy class at CHI Health Wellness Center at Lakeside in Omaha.
 Emily get changed after her aqua therapy class at CHI Health Wellness Center at Lakeside in Omaha.
Emily get changed after her aqua therapy class at CHI Health Wellness Center at Lakeside in Omaha.
 Emily Koesters has a deep love of the Mother Mary. Emily is pictured here with her Mary necklace that she wears most days.
Emily Koesters has a deep love of the Mother Mary. Emily is pictured here with her Mary necklace that she wears most days.
 The theme of "believe" runs throughout the Koesters home, apparent in may decorative items and everyday household pieces. Erin explains the theme as encompassing all beliefs and ideas rather than one religious or spiritual belief.
The theme of "believe" runs throughout the Koesters home, apparent in may decorative items and everyday household pieces. Erin explains the theme as encompassing all beliefs and ideas rather than one religious or spiritual belief.
 The family's theme of "believe" carries to Erin's car as well.
The family's theme of "believe" carries to Erin's car as well.
 Emily walks to the edge of the family's property.
Emily walks to the edge of the family's property.
 Taylor-Jo and Emily check out the family's pool.
Taylor-Jo and Emily check out the family's pool.
 Taylor-Jo and Emily walk through the family's property.
Taylor-Jo and Emily walk through the family's property.
 Erin shows her daughters' Barbie play room in the original part of the family's home. When Emily began to need more round-the-clock care, the family built an addition on their home so that everyone could be living and sleeping on the first floor.
Erin shows her daughters' Barbie play room in the original part of the family's home. When Emily began to need more round-the-clock care, the family built an addition on their home so that everyone could be living and sleeping on the first floor.
 Emily explores her playhouse.
Emily explores her playhouse.
 Emily reads aloud a book about guinea pigs while playing with her pet guinea pig, Oreo.
Emily reads aloud a book about guinea pigs while playing with her pet guinea pig, Oreo.
EmilyStory043.JPG
 Erin juggles a busy family schedule, filled with Emily's doctor appointments, her daughters' social commitments, school, running a non-profit, and generating income with her home-based business. The staggering number of hours spent battling for medications and services to be covered by Emily's Medicaid is not only taxing but takes Erin away from time spent with her family.
Erin juggles a busy family schedule, filled with Emily's doctor appointments, her daughters' social commitments, school, running a non-profit, and generating income with her home-based business. The staggering number of hours spent battling for medications and services to be covered by Emily's Medicaid is not only taxing but takes Erin away from time spent with her family.
 Erin juggles a busy family schedule, filled with Emily's doctor appointments, her daughters' social commitments, school, running a non-profit, and generating income with her home-based business. The staggering number of hours spent battling for medications and services to be covered by Emily's Medicaid is not only taxing but takes Erin away from time spent with her family.
Erin juggles a busy family schedule, filled with Emily's doctor appointments, her daughters' social commitments, school, running a non-profit, and generating income with her home-based business. The staggering number of hours spent battling for medications and services to be covered by Emily's Medicaid is not only taxing but takes Erin away from time spent with her family.
 Emily takes a sip of water while playing in the backyard with her sister.
Emily takes a sip of water while playing in the backyard with her sister.
 Joe dries Emily’s hair after washing it in the kitchen sink.
Joe dries Emily’s hair after washing it in the kitchen sink.
 Joe and Emily play before he leaves for work.
Joe and Emily play before he leaves for work.
 Erin puts sunscreen on Emily before the girls go outside to play. Some of Emily’s medications make her very sensitive to sunlight, burning almost instantly if she is exposed to the sun.
Erin puts sunscreen on Emily before the girls go outside to play. Some of Emily’s medications make her very sensitive to sunlight, burning almost instantly if she is exposed to the sun.
 Emily rests after an early morning and playing outside in the summer heat.
Emily rests after an early morning and playing outside in the summer heat.
 Emily greets her father Joe after he came home from work as the family readies for dinner.
Emily greets her father Joe after he came home from work as the family readies for dinner.
 Erin administers a round of Emily's evening medications while Emily's sister Taylor-Jo tries to play with her.
Erin administers a round of Emily's evening medications while Emily's sister Taylor-Jo tries to play with her.
EmilyStory053.JPG
 Erin and Emily embrace.
Erin and Emily embrace.
 Emily visits with her mother Erin at the end of the day.
Emily visits with her mother Erin at the end of the day.
 The Koesters family at their home in Gretna.
The Koesters family at their home in Gretna.
 Emily explores her playhouse.
Emily explores her playhouse.
 Emily with her mother Erin, father Joe and younger sister Taylor-Jo.
Emily with her mother Erin, father Joe and younger sister Taylor-Jo.
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